Abstract
Medical assistance in dying for mental illness as a sole underlying medical condition and its relationship to suicide: A qualitative lived experience-engaged study
Hawke, L.D., Bastidas-Bilbao, H., Cappe, V., van Kesteren, M.R., Stewart, D.E., Gupta, M., ... & MAiD Study Team at the Centre for Addiction and Mental Health
Objective: This lived experience-engaged study aims to understand patient and family perspectives on the relationship between suicidality and medical assistance in dying when the sole underlying medical condition is mental illness (MAiD MI-SUMC).
Method: Thirty individuals with mental illness (age M =41.8 years, SD=14.2) and 25 family members (age M =47.5 years, SD=16.0 ) participated in qualitative interviews examining perspectives on MAiD MI-SUMC and its relationship with suicide. Audio recordings were transcribed and analysed using reflexive thematic analysis. People with lived experience were engaged in the research process as team members.
Results: Four main themes were developed, which were consistent across individuals with mental illness and family members: (a) deciding to die is an individual choice to end the ongoing intolerable suffering of people with mental illness; (b) MAiD MISUMC is the same as suicide because the end result is death, although suicide can be more impulsive; (c) MAiD MI-SUMC is a humane, dignified, safe, nonstigmatized alternative to suicide; and (4) suicidality should be considered when MAiD MI-SUMC is requested, but suicidality’s role is multifaceted given its diverse manifestations.
Conclusion: For patient-oriented mental health policy and treatment, it is critical that the voices of people with lived experience be heard on the issue of MAiD MI-SUMC. Given the important intersections between MAiD MI-SUMC and suicidality and the context of suicide prevention, the role that suicidality should play in MAiD MI-SUMC is multifaceted. Future research and policy development are required to ensure that patient and family perspectives guide the development and implementation of MAiD MI-SUMC policy and practice.